Mission Accomplished :)

I am very happy to inform everyone that this mission has been accomplished. Samantha is going home today!!! She kept her O2 numbers up over night and the dr. is very pleased.
She will do another week or two of IVs at home and intensive breathing treatments and CPT, but it is well worth it.
Kathie and Samantha

Update 1/28/2010

Samantha is improving. She has not been on oxygen since yesterday morning, but she did desat overnight to 88%. Dr wrote orders today that if she desats below 90% to put oxygen on her whether she is awake or asleep to get/keep her at 90%.

Before she can come home she has to maintain over 90% day and night on her own with no help...

Maybe we will know more tomorrow.
Here is praying for numbers above 90%.

Kathie and Samantha

Update...Samantha still in Hospital

Samantha is still in the hospital, and Friday is not looking very good as a discharge date at this time...She is still requiring oxygen off and on and the doctors want her totally off of oxygen before she goes home. Come Friday if she is not significantly better they will do another chest xray to see if there has been any change.
Now they are saying possible discharge over weekend, but they said to take it a day at a time and not get our hopes up until her oxygen sats come up and stay up without the oxygen.
Kathie and Samantha.

Update on Samantha

Samantha is doing pretty well. She is off of oxygen more than she is on it now, which is good. She still needs a little help on occasion, especially when she is sleeping. The doctor is talking like she should go home Thursday evening or Friday, just depends on when she holds her numbers herself without the added help of oxygen.
She is on steroids and will be for a little while, this is the first time she has been on them since 2007, but they think it is more of an asthma component instead of all CF, this time.
She is slowly putting back on some weight that she had lost, but I am glad to say that she had enough weight on her that the loss wasn't a huge issue this time.

Best to all, and I will update when I know more.

Kathie and Samantha

Back in the Hospital

Soooo....Samantha was admitted to the hospital last night, or I guess I should say early this morning. We were in the ER by midnight, with Oxygen levels of 87-89% and when we got to the ER she was 89%, so she was put on some oxygen to help her out and a nice collection of meds. She was given a double neb., to help open her up, some steroids thru her port and an IV antibiotic to get her started.
Based on her last two cultures she will be taking 3 IV antibiotics and 1 oral antibiotic, plus the steroid until her goopies from last night come back with cultures.
Her chest xray actually looked the same if not a little better than the one in September so the Dr. is shocked that her numbers look the way they do, but she is working some to breathe.
She started out on 2L oxygen, and was able to reduce to 1L for a little while, but is back up to 2L and is satting 93% right.

Please pray for the girl to get better. She is missing her Barnham and Bailey Circus trip today, that she had given to her by Community Peds Care, so let's hope she can get well soon enough to be able to go bowling next Sunday with Starlight.

Loves
Kathie and Samantha

My Baby Girl is Growing Up!!! Making Mama Proud

So, Samantha is still doing fairly well. Cough is beginning to increase a little, and on occasion she coughs so hard that she has problems catching her breath, but nothing horrible and her nurses say she is still sounding pretty good, with some wheezing and a few more coughing spells at night than normal. Right now it looks like she will not need to visit CF clinic before her scheduled appointment later this month.

On to her growing up on me....She knows the order of her nebulized meds and goes to get the right cup for each one (I have them numbered and labeled so I can make sure nothing gets forgotten), she will then go get the respective med, bring it to me for me to check and make sure it is right and then she puts it in the neb cup and hooks it up to the nebulizer and away she goes with her meds. She won't hook up her vest on her own because she doesn't particularly like it, but she will do her other forms of CPT or come ask me to beat on her if she is really having issues getting her lungs cleared.
I never expected her to take this much control over her care at 6, but I have brought her up knowing what needs to be done when, so if I am not in her room at the hospital when she does treatments she knows to ask questions (and boy does she ask) so that she knows what is going on.

Samantha Mommy loves you and is so proud of you. Hope you continue to stay so proactive with you care for the rest of your life! :)