We went to the Dr. today and Samantha gets to spend a little more time out of the hospital (we are on like week 16 now). She will do 2 weeks of Bactrim, then her 4 weeks of TOBI and another week of Bactrim, then back to the Dr. we go. She is trying to get sick but is still hanging in there nicely.
She is doing absolutely wonderful weight wise. She is now considered OBESE (47 lb 6.2 oz), so we cut back 500 of her calories that she gets through the feeding tube.
Kathie
9 years!!!
8 years ago
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