Update from DR

Samantha will stay on IVs for a few more days and then she will start inhaled antibiotics. Instead of a month on and a month off she will alternate inhaled antibiotics monthly which means everyday she will be inhaling an antibiotic to try to keep the crud away.
Weight and BMI wise she is still doing fabulous.
Anyone that has any insight on the E-Flow nebulizer for me, please feel free to share, as Samantha is getting one.

Kathie

Update: Out of Hospital

Samantha is out of the hospital and on 2 IV antibiotics and 2 oral antibiotics in addition to everything else she takes. She is growing ORSA (resistant staph), Stenotrophomonas, and Tobra resistant Pseudomonas.
We will know next week how long she will stay on IVs and what her inhaled antibiotic will be since TOBI won't work for her.

Until Next Time,
Kathie

Our Luck Ran Out

Soooo, after 29 weeks of awesome luck, it is time for Samantha to go back in the hospital for IVs. Let's hope that this round works as well as the round she had back in February and she can have another 29 weeks or more out of the hospital after this.

Also, please keep a young friend of ours in your prayers, she is in the hospital with complications from a recent scoliosis surgery and needs all the prayers in the world.

Updates to come once Samantha is in a room and I know the plan.
Kathie

A little late, but good news from ENT

I am running behind on updating, but Samantha had a visit with ENT on Friday. He said she looked good and he will see her in 6 months unless she gets sick and needs to see him sooner. She has lost just a little weight, but no worries because her BMI is 97%. I have lost track of how long she has been out of the hospital, I am just glad that it has been long enough that I can actually lose track of it, but I know we are working on 7 MONTHS hospital free. YAYYYYYYY Samantha. She is still continually fighting something, and I just got over the flu, but she is still hanging right in there holding her own.

Till Next Time,
Kathie