Halloween

Some of the Halloween pictures are up. She had so much fun being Tinkerbell and she won second place in the costume contest.
More pictures will come over the next few days.
Go here to see Halloween pictures
Kathie

Samantha Update

So, Samantha is good for now. The doc thinks she got a cold about the time she was clearing up from the previous junk. She is going to be getting CPT 3-4 times a day, increasing Pulmozyme to twice a day for two weeks, and staying on the antibiotics until Nov.11. I have to cal Nov. 7 to update them on how she is doing and she goes back in for an appointment on November 11, at which time she may or may not go in the hospital depending on how she is doing.
Her weight is up to 39.8 pounds. Which means we get to cut out two of her day feeds and see how she does.

Kathie

Samantha, ER, Pictures

Pictures are up of Samantha's pumpkin, hope everyone enjoys.
Also, had to make a trip to the ER tonight, she began hallucinating, talking about big butterflies trying to eat her, it turns out she was having a very rare reaction to the levaquin, so she isn't taking it anymore. We were told to follow up on Tuesday with the appointment that we already have and to be prepared to be admitted.
Look here for the pictures.
Kathie

Samantha

Samantha had levaquin added to her cocktail of meds on Friday. She had gotten better on the Tobramyacin and Bactrim, then started getting sick again. She follows up with CF Tuesday morning to see what the doctor thinks.

She also finally got her flu shot so maybe the flu will stay at bay. It has worked so far, she has had the shot every year and has not gotten the flu, even the two years that I had the flu she did not get it.

Otherwise, we have carved her pumpkin, pictures will be up soon, and she will be Tinkerbell for Halloween.
I also enrolled her in something called Kidgets with the local mall so she can eat breakfast with Santa and the Easter Bunny and do a lot of other cool things.

She also has fittings for her fashion show coming up on November 18, and the Fashion show is December 6. I will post any pictures from that stuff as soon as I can after the events.

Kathie

Samantha and Car

Yes you read that right I finally have a vehicle after my other one died a little over a month ago.

Samantha is still holding in there on oral nebulized antibiotics, some days are better than others, but so far so good. She is feeling a little yucky this morning so she is still laying down but she needs the rest so that is good. Also, she currently weighs more than she has ever weighed before, a whopping 39 pounds. How great is that I am so happy for her.

Kathie

Here We Go Again

Samantha started coughing and clearing her throat over the weekend so I increased her albuterol and vest, and it isn't helping much. So I called clinic today and she is starting back on oral and inhaled antibiotics. Hopefully (fingers, toes, and everything else crossed) hoping that they work and she doesn't have to go back in the hospital. She has been doing so well and is actually beginning to gain weight, still slowly, but we are getting there.

Kathie

Very Happy Weight

I weighed Samantha this morning and I am very happy to say that 3000 calories a day is working. She is up to 37.8 pounds, which puts her BMI at 17.28%. The CFF recommends BMI be 21% so we are not there yet, but very, very close. The highest her BMI had been before this was 16.2ish%, so a great improvement. According to the CDC chart for BMI for age Samantha is right at 95%, how absolutely wonderful.


THREE CHEERS FOR SAMANTHA!!!!!