2/11/09

Samantha came off of her oxygen about 2 o'clock today and has been doing well without it since then. When she goes to sleep she teeters on needing it, but is still doing better than yesterday.
The doctor said today that since she had so much gunk in her lungs that she will be in the hospital at least 7 days and may be in 14 days before coming home.

Kathie

Update

Samantha had her bronchoscopy this morning and she did very well. She had a bunch of junk in her airways, especially in the lower right area which is were she always starts sounding yucky first when she is getting sick. She did fairly well on room air for the first 30 minutes to hour after the bronch, but then she started desatting to 88% and couldn't get it back up so she has been on 1.5L of O2 since roughly lunchtime, and is holding ok. The dr wants her to be 93% or better when awake and 90% or better when asleep. She has been holding right at 93% on 1.5L while awake and 91%ish while asleep on the 1.5L.

I will update more when I know more.

Kathie

Samantha is in the Hospital

Samantha is back in the hospital. She has been off and on of 1L oxygen, but she is doing ok. She will have a bronchoscopy in the morning to try to find out what is causing her to have lower respiratory infections. They decided to do a bronch because her throat cultures have changed so much over the last few months with varying sensitivities and resistances to various meds.

Kathie

Update on Samantha

Samantha is hanging in there. She is still battling the pseudomonas. Right now she has acute bronchitis and was put back on another 3 weeks of Cippro and is to continue her TOBI for another 28 days (making 56 days straight) to try to keep her out of the hospital.

In the mean time we are gearing up for Great Strides. Please take a moment and donate here so we can all work together to make CF=CURE FOUND.

Thanks
Kathie

Update on Samantha (pseudomas)

I just got a call from Samantha's doctor and her latest culture shows that she is culturing pseudomonas ( http://en.wikipedia.org/wiki/Pseudomonas_aeruginosa ).
She has not cultured this since 2005 and then we were able to eradicate it within 3 months, hopefully we will have the same luck this time.
She will be on bactrim for the rest of her month on, cippro for 3 weeks, and TOBI.

Kathie

Fashion Show

Samantha had a wonderful time at her fashion show this past weekend. You can view pictures here.
Kathie

Update on Samantha

Samantha got to come home on Thanksgiving morning, and had a good Thanksgiving at home. I am very proud to say that she is up to 42 pounds and seems to be doing well.
She goes back to CF tomorrow to see if she gets to come off of IVs or if she continues for another week.
Kathie